Members of your loved one’s healthcare team will also have left you with telephone numbers to contact them if you need to.
If you would like to speak to someone outside of your healthcare team for additional support you could speak to an end-of-life doula. These are trained people who sit with the dying and support those who are caring for them.
Caring for someone at the end of their life can be a time that creates precious memories, but it can also be demanding, both physically and emotionally. When your loved one does die it’s good to reach out to others for help to get through the grief that follows.
If you are caring for someone with a learning disability support to access appropriate palliative care, the PCPLD network has more information. Mary Stevens Hospice also offers information and tailored resources to help with palliative care. You can also speak to your community nurse (if you have one) or speak to your GP to discuss if a referral to Community Learning Disability Specialist Health Services at The Ridge Hill Centre would be beneficial.
If your loved one is dying and has dementia the Alzheimer’s Society has information on end of life care for someone in the later stages of dementia.